Indiana University School of Medicine Resource Links

By Webmaster|February 4, 2016|Epilepsy Foundation, Epilepsy Info, Resources|

Resource Links


Content list was written and belongs to IU School of Medicine. The following links are provided for informational purposes only.  Indiana Epilepsy Services cannot be responsible for the content or accuracy of these websites. 

Access Indiana Information Network:

www.indianafind.com/Government/Access_Indiana_Information_Network_L7876/
Description: Official web site of the State of Indiana.

ACRC of Indiana

www.arcind.org/
(317) 977-2375 or (800) 382-9100

Description: Organization established by parents of children with developmental disabilities who provides services and resources for a wide variety of services. Some services include children services, employment services, adult day activities, school age support. There are 44 local chapters throught Indiana.

ADA Great Lakes Technical Assistance Center:

www.adagreatlakes.org
1640 W. Roosevelt Road
Chicago, IL 60608
(312) 413-0407

Description: Provides information, materials, technical assistance, and training on the Americans with Disabilities Act (ADA).  One of ten regional centers funded by the National Institute on Disability and Rehabilitation Research (NIDDR), a division of the US Department of Education.  Serves Illinois, Indiana, Michigan, Wisconsin, Minnesota, and Ohio.

American Academy of Neurology:

www.aan.com
1080 Montreal Avenue
Saint Paul, MN 55116
(800) 879-1960

Description: A medical specialty society of 21,000 neurologists established to advance the art and science of neurology. Their mission is to ensure principles and standards to patient care. The organization is strongly committed to advocacy of patients with neurological disorders.

To receive a free subscription, call (800) 422-2681.

Antiepileptic Drug Pregnancy Registry:

www.aedpregnancyregistry.org
Massachusetts General Hospital
121 Innerbelt Road, Room 220
Somerville, MA  02143
(888) 233-2334

Description: AED Pregnancy Registry. Agency dedicated to determine the safety of anticonvulsant medications to determine the effects of anticonvulsant medication on the fetus during pregnancy.

Area Agencies on Aging:

www.in.gov/fssa/da/2551.htm
(800) 986-3505 to connect to local offices

Description: Provides case management/information and referral to various services for persons who are aging or developmentally disabled.

Artwork Contest for Persons with Epilepsy:

www.expressionsofcourage.com
(800) 526-7736 for more information

Description: Goal is to provide a way for people with epilepsy to express themselves through art. The artwork symbolizes the spirit of persons diagnosed with epilepsy and truly serves as an expression of their courage. Anyone, of any age, with epilepsy may enter the contest.

ATTAIN:

www.attaininc.org
32 East Washington Street, Suite 1400
Indianapolis, IN 46204
(317) 486-8808 or (800) 528-8246

Description: ATTAIN promotes access to services to help those with functional limitations.  Also provides consumer advocacy and training to help make sure that all people with functional limitations will have access to assistive devices.

Canine Assistants:

www.canineassistance.org
3160 Francis Road
Alpharetta, GA 30004
(800) 771-7221

Description: A nonprofit organization dedicated to providing service dogs to children and adults with epilepsy, physical disabilities, and other special needs.

CeDIR:

www.iidc.indiana.edu/cedir/
2853 East Tenth Street
Bloomington, IN 47408
(812) 855-9396 (voice/TTY) or (800) 437-7924 (Indiana only; voice/TTY)

Description: CeDIR is the Center for Disability Information and Referral, part of the Indiana Institute on Disability and Community.  Several resources are available for CeDIR to serve the disability-related information needs of the people of Indiana, including a lending library, a reference collection, product development, an extensive web site, and technical assistance.

Community Resources for Children with Special Needs:

www.aboutspecialkids.org
7275 Shadeland Avenue, Suite 1
Indianapolis, IN 46259
(317) 257-8683 or toll free (800) 964-4746

Description: Provides information, support, and access to services for children with special needs and their families. They offer training classes on issues such as special education and insurance and provide a resource directory for services around the state.

Connect2Help:

www.connect2help.org
3901 North Meridian Street, Suite 300
Indianapolis, IN 46208
HELPLINE: (317) 926-HELP (4357)

Description: A free and confidential information and referral service for the following counties: Boone, Hamilton, Hancock, Hendricks, Johnson, Marion, Morgan and Shelby.  Statewide network also available.  Operates primarily on a callback basis.  Maintains database of service providers (Central Indiana Human Services Database).  Mission statement: IRN facilitates connections between people who need human services and those who provide them.

Diastat:

www.diastat.com

Description: The only FDA approved acute at-home medication for patients on stable anti-seizure medication who may experience breakthrough, serial, or cluster seizures.

Easter Seals

www.eastersealscrossroads.org

Description: A nationwide organization that has 7 local offices in Indiana. Provides assistance for persons with special needs. A wide array of services are offered. Some services include assistance with physical mobility, returning to the workplace, gaining greater independence, medical rehabilitation, services for adults and seniors, and recreation.

Epilepsy Advocate:

www.epilepsyadvocate.com

Description: This website provides information for those interested in information regarding epilepsy advocates who are finding ways to take control of epilepsy and their potential. You may also sign up to receive a free subscription to their quarterly magazine.

Epilepsy Foundation (of America):

www.epilepsyfoundation.org
4351 Garden City Drive
Landover, Maryland 20785
(800) 332-1000 or (301) 459-3700

Description: A non-profit national organization dedicated to the welfare of people with epilepsy. Goals are research, education, advocacy, and service. Information regarding summer camps, legal assistance, research, and other valuable information is available on their website.

Epilepsy Foundation of Indiana:

www.indianaepilepsyfoundation.org
3901 West 86th Street, Suite 380
Indianapolis, Indiana
(800) 526-6618

Description: The Indiana chapter of the National Epilepsy Foundation of America. Goals include raising awareness, education, and providing information on resources available. Log onto their website to find out about events and services offered throughout the State.

Epilepsy Phenome Genome Project:

www.epgp.org
(888) 279-EPGP (3747)

Description: Taxpayer funded research study that is looking at how genes affect certain types of epilepsies. There are 13 clinical centers around the country who are working in collaboration with the National Institute of Health and the National Institute of Neurological Disorders and Stroke. If you are interested in participating in a program and/or to find a clinical center participating in the study, log onto the website.

Epilepsy Summer Camps:

www.epilepsy.com
Family Helpline: (800) 433-0746 or (866) 275-1274 (TTY/TDD)

Description: Find out about the week long epilepsy camps for kids offered around the United States. Currently, there are 27 states that offer these camps. Scholarships are available.

FIRST STEPS Early Intervention System:

www.in.gov/fssa/ddrs/4964.htm
(317) 232-1141 or (800) 441-7837

Description: First Steps provides early intervention for families which have infants and toddlers with developmental delays or who show signs of being at risk to have certain delays in the future.  Services provided statewide for at-risk children from birth to three years old.

Free Gas USA, Inc.

www.freegasusa.org

Description: A not-for-profit organization that provides gas grants ranging from $50-$1200. Grant must be submitted by a referral agency and grant money is restricted to fuel use for cost of travel for employment, education, medical appointments, and grocery shopping.

Governor’s Planning Council for People with Disabilities:

www.in.gov/gpcpd
150 W. Market Street, Suite 628
Indianapolis, IN 46204
(317) 232-7770

Description: An independent state agency that facilitates change.  Their mission is to promote public policy which leads to the independence, productivity and inclusion of people with disabilities in all aspects of society.  Sponsors several state-wide initiatives as part of the Council mission, including Partners in Policymaking.  Hosts a yearly conference.

Healthfinder:

www.healthfinder.gov

Description: A free gateway to reliable consumer health and information services developed by the US Health and Human Services Administration. Selected online publications, clearing houses, databases, websites, support and self-help groups. Also includes government agencies and not-for-profit organizations which produce reliable health information.

INARF:

www.inarf.org
615 N. Alabama Street, Suite 410
Indianapolis, IN 46204
(317) 634-4957

Description: A membership organization to provide leadership and support to agencies which serve the comprehensive needs of persons with disabilities.

Indiana Civil Rights Commission:

www.in.gov/icrc
100 N. Senate Avenue
Indiana Government Center North N-103
Indianapolis, IN 46204
(317) 232-2600 or (800) 628-2909

Description: Provides support and awareness of civil rights issues; enforces laws that prohibit discrimination in employment, housing, education, public accommodation, and credit.

Indiana Department of Education Division of Exceptional Learners–Special Education:

www.doe.state.in.us/exceptional/speced/
Statehouse Room 229
Indianapolis, IN 46204
(317) 232-0570 or (877) 851-4106

Description: Website provides links to educate about services for students with special needs and disabilities.  Includes applicable laws, rules, guidelines and regulations, as well as printable publications.

Indiana Department of Health:

www.in.gov/isdh/21047.htm

Description: Focus is to address questions relating to maternal and child health services in the state. Designed to promote services and programs available: information, referrals, consumer education, advocacy, emergency assistance, and help with accessing Medicaid and WIC providers. 7:30 a.m. to 5:00 p.m. Monday – Friday. Sponsored through the Indiana State Department of Health.

Indiana Family and Social Services Administration:

www.state.in.us/fssa

Description: Provides services to families with issues associated with low income, mental illness, addiction, mental retardation, a disability, aging, and children who are at risk for healthy development.

Indiana Institute on Disability and Community:

www.iidc.indiana.edu
2853 East Tenth Street
Bloomington, IN 47408
(812) 855-6508 or (800) 528-8246

Description: Indiana University’s Center for Excellence in Developmental Disabilities.  The mission is to provide leadership that enables communities to include, support, and empower people with disabilities and family members.  Maintains seven centers to address the following issues:  early intervention; school improvement and inclusion; transition, employment and careers; aging issues; autism spectrum disorders; disability information and referral; planning and policy issues; technology; and individual and family perspectives.

Indiana Law Schools

Indiana University School of Law-Bloomington, www.law.indiana.edu/.com
Indiana University School of Law-Indianapolis. www.indylaw.indiana.edu/.com
Notre Dame School of Law, South Bend. www.nd.edu/.com
Valparaiso University School of Law www.valpo.edu/law/.com

Description: Law schools around the state of Indiana that provide free or low cost help to those who qualify.

Indiana Protection and Advocacy Services:

www.state.in.us/ipas
4701 N. Keystone Avenue, Suite 222
Indianapolis, IN 46205
(317) 722-5555 or (800) 622-4845

Description: Provides assistance for the developmentally disabled who face legal and educational obstacles.

Indianapolis Bar Association

www.indybar.org/freelegal.com
(317) 269-2000

Description: Indianapolis bar association offers free legal advice to those in need to speak to a qualified attorney by phone. Program is offered the 2nd Tuesday of every month from 6-8pm, except for December. Upcoming dates for 2009 include: June 9th, July 14th, August 11th, September 8th, October 13th, and November 10th. Also available is the Bankruptcy Legal Help line which is available every 2nd and 4th Wednesday of every month from Noon-1pm. Call (317) 269-1910.

In*Source:

www.insource.org
809 North Michigan Street
South Bend, IN 46601-1036
(574) 234-7101 or (800) 332-4433

Description: Indiana Resource Center for Families with Special Needs.  The mission of In*Source is to provide parents, families, and service providers in Indiana the information and training necessary to help assure effective educational programs and appropriate services for children and young adults with disabilities.

Jeanne A. Carpenter Epilepsy Legal Defense Fund:

www.epilepsylegal.org or Legalrights@efa.org
(800) 332-1000

Description: A Legal organization which is part of the Epilepsy Foundation of America that provides legal service for epilepsy discrimination and injustice cases.

J. Kiffin Travel Fund

www.epilepsyfoundation.org

Description: Travel assistance funding for persons with epilepsy who must travel more than 50 miles from home to receive medical care and/or FDA approved treatment for seizure disorder but lack adequate resources to meet cost of travel.

Ketogenic Diet:

www.epilepsyfoundation.org/answerplace/Medical/treatment/diet/

Description: To find out information about the ketogenic diet, log onto the Epilepsy Foundation of America’s website. The site includes information on the most common questions that parents have in regards to the diet.

Medical identification ID and Jewelry:

www.americanmedical-id.com
American Medical ID
949 Wakefield, Suite 100
Houston, TX, 77018
(800) 363-5985

Description: American Medical ID is a not-for-profit organization that offers personalized medical ID jewelry. ID jewelry includes bracelets, necklaces, watches, sport bands, and jewelry made specifically for kids.

National Association of Epilepsy Centers:

www.naec-epilepsy.org
5775 Wayzata Boulevard
Suite 200
Minneapolis, MN 55416
(888) 525-4526 or (952) 525-4526

Description: The NAEC is an association of more than 50 specialized epilepsy centers in the U.S. The goal of the NAEC is to make high quality care available to persons with epilepsy. The organization rates epilepsy centers as level 3 or level 4. The Indiana University Epilepsy Clinic has received the highest ranking of Level 4 by the association. Log onto their website to find an epilepsy center near you.

National Family Caregivers Association:

www.thefamilycaregiver.org
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
(800) 896-3650

Description: The NFCA educates, supports, empowers, and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness, disability, or the frailties of old age.

National Foundation of Dentistry for the Handicapped

www.nfdh.org.
(303) 534-5360
Description: Volunteer dentists who donate dental services (DDS) to individuals with special needs. For more information, contact the Indiana DDS coordinator at (317) 234-5713 for patients in Northern Indiana and (317) 631-6022 or (800) 452-6022 for Southern Indiana.

National Institutes of Health:

www.nih.gov
National Institutes of Health
9000 Rockville Pike
Bethesda, MD 20892
(301) 496-4000

Description: NIH is part of the U.S. Department of Health and Human Services agency that serves as the nation’s medical research agency. With 27 institutes and centers, the NIH provides leadership and funding to researchers in every state and throughout the world.

NetWish

www.netwish.org

Description: A not-for-profit organizations that provides financial assistance, up to $500, for those who need it.

Social Security Online:

www.ssa.gov
(866) 748-8008

Description: Information about various social security and disability options.

Spanish language Epilepsy website and phone number:

www.fundacionparalaepilepsia.org
(800) 332-1000

Description: Website sponsored by the Epilepsy Foundation of America that provides information regarding epilepsy in Spanish.

Scholarships for persons with epilepsy and other disabilities:

assistance for post secondary education for students with disabilities including epilepsy.

    • Local epilepsy state foundations: Some state epilepsy foundations like Illinois and Idaho

offer epilepsy scholarships to persons with epilepsy that reside in those states. At this time, the Epilepsy Foundation of Indiana does not offer scholarships.

  • Other scholarships for persons with disabilities: http://www.Collegescholarships.org. Includes scholarships from major companies including but not limited to: Ford, Microsoft, Pepsi, Target, Exxon, Best Buy, Xerox, etc…

The Non-epileptic Seizure Organization

www.non-epilepticseizures.com.

Description: Information and resources for families and persons with non-epileptic seizures.

The Center for Courageous Kids

www.courageouskids.org
(270) 618-2900

Description: Free medical camp for children and their families with medical illness. Includes those children with epilepsy.

The Gennesaret Free Clinic

www.gennesaret.mysite-4now.com
(317) 639-5645

Description: A free clinic in Indiana that provides full health services, including vision and dental, to the poor. The clinic offers many health disciplines and specialties.

The Job Accommodation Network

www.jan.wvu.edu
(800) 526-7234 or (800) ADA-WORK

Description: Resource for Workplace Productivity Enhancements and Reasonable Accommodation Solutions. The services are provided for by the United States Department of Labor, Office of Disability Employment Policy (ODEP) for the purpose of facilitating employee retention of workers with disabilities by providing reasonable accommodations.

USALS

www.usattorneylegalservices.com/free-legal-aid-indiana.html

Description: List of legal aid programs and pro bono programs that provide free or low cost legal services for the low in-come community.

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